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Our Journey of Hope for Healing

Has your child’s diagnosis left you wondering if autism treatment exists or what’s possible? I understand. When it happened to me I felt totally lost and hopeless, and abandoned by healthcare practitioners.

I’m here to offer you my story of finding hope for healing to encourage you on your journey with autism. Treatment DOES exist, and I know this through my experience with my son.

Finding Out the Diagnosis

It was three days before Mother’s Day, and the Early Intervention team was coming to my house to tell me the results of my son’s evaluation for autism.

I knew as soon as I opened the door that it was not going to be good news. My heart sank.  They were quiet and polite, but their body language was screaming. The meeting began, and they started talking about what they noticed during the autism evaluation.

I finally stopped them and said, “look, I need you to tell me if he has autism or not, then you can tell me the rest.”  Talking around it like they were afraid to tell me was driving me nuts.

One of the therapists sighed and said, “his cognitive abilities are normal, but he has moderate severity autism.”

The rest of the time I listened, but I was freaking out inside. They told us what autism was and what it might mean for our son’s future. They talked about all of his testing results and probably more. I don’t remember it all because I was just trying to hold it together.  After what seemed like a long time, they all left.  My husband and I talked about the meeting and both of us tried to mentally and emotionally process the news.

Diagnosis Aftermath

All I remember was that over the following days I went back and forth between numbness and absolute devastation and I couldn’t stop crying.

I cried for three days. The next day, Mother’s Day, I came across a quote,

“Dum Spiro Spero.” It’s Latin for “While I breathe, I hope.”

I decided to get it tattooed that day on the inside of my left wrist as a gift to myself.  That may seem drastic, but for me, it was a ritual, a catharsis, and an affirmation of my firm decision to stop being afraid and angry and sad.  It was a daily reminder to put my energy into healing and not give up on my son’s health.  Many times when I have struggled with some aspect of autism, I have glanced at my wrist and it has refocused and renewed me. Without hope, we are lost.

Hitting Dead Ends with Providers

After a few days, I reached out to our pediatrician about our recent diagnosis to talk about autism treatment. He said to give it more time and to get him in speech therapy—that he wasn’t sure it was the right diagnosis.

I wanted to feel relief. I wanted to believe that the diagnosis was wrong, but I knew in my heart I shouldn’t wait. Something was wrong. I pushed him a little saying, “okay but what else can we do?” He shrugged and gave me a referral for a neurologist. It felt like he did it to placate me and to give the problem to someone else.

I wanted to believe that the diagnosis was wrong, but I knew in my heart I shouldn’t wait. Something was wrong.

The neurologist was worthless. He said if we didn’t agree with the diagnosis, to get him re-evaluated. Unless our son started having seizures, he couldn’t help. I remember sitting there thinking “this can’t be it…there has to be more than this.”  

I refused to believe that there was NOTHING I could do to improve my son’s health.

My Search for Autism Treatment Begins

So I went to Google and started researching my ass off about autism treatment. I read forum posts, thousands of research studies, and watched videos on YouTube of doctors speaking about autism treatment. Next, I ordered a ton of books off Amazon…trying to cram as much information into my brain as quickly as possible.

Over and over, I read that the golden window for the best autism treatment results was between 2-5 years old. During that time they have the most neuroplasticity. I felt like I was racing against the clock trying to find a way to help him get better.

Several blogs by other moms introduced me to the biomedical treatment approach and it resonated so strongly.

The explanation that autism symptoms were caused by complex medical issues and not just a mental disorder made so much sense.

I really started to feel like we could handle this, and so I intensified my research.

 

 

And Then it Started Working

We started with homeopathy because I read a book by Amy Lansky called Impossible Cure. Although I was extremely skeptical, we saw such beautiful growth with his social development. I was so skeptical that I didn’t tell anyone my son had started Classical Homeopathy, curious to see if anyone noticed. Everyone noticed, but my husband was still not 100% on board.

Our next treatment was B12 because of all of the research showing it can help with speech. The results from the B12 were so dramatic that my skeptical husband was finally a believer in biomed. Our son went from barely having three sign language words to being verbal and gaining new words almost daily. We kept sending our son to speech therapy and Floortime therapy. After almost a year of speech therapy with no progress, he was finally making gains.

I started to be active in a bunch of Facebook groups. Trying to search for information in groups was so difficult and time-consuming. Facebook is definitely not made for searching for that type of information.  However, I deeply appreciated the knowledge and support shared by other parents. I wished there was a way to have that support and searchable information without having to be on Facebook.

 

Discovering a Huge Need for Treatment Information

 As I was posting different results from what we were doing, other moms started to message me, sometimes about specific supplements or specific symptoms they were struggling with. Since I have a coaching certification and did life coaching for several years, I found myself coaching the moms contacting me.

Soon, people I knew started approaching me for guidance. They were feeling lost after diagnosis and saw the successes I had with my son. I wanted so much to be able to give them everything. But there was no way that I could put all the information I learned over the course of three years and over 3000 hours of research in a single email.

That was so frustrating because I felt like I had so much to share. If I gave them as much as I could all at once, people felt so overwhelmed that they quit before they began. I felt like I let them down.

When you know something has the potential to help many others’ children, you want them to know that information too. The way I gave other moms my knowledge about autism started to evolve…

How can I put everything together so that it’s all in one place?

 

What would I want if I were starting over from a new diagnosis?

 

What would have been most helpful to me?

 

What are the needs of parents struggling with a new diagnosis and difficult symptoms?

 

It’s not just the information, they need support, both financial and emotional.

 

An Idea Was Born

 One day over lunch I got up the courage to tell a friend who was also on the biomed journey about this crazy idea I had. I wanted to create a community, courses, an online library, a network of doctors, and a way to help families pay for the care their insurance wouldn’t cover.

It was a lot to take on alone and I knew it. She instantly wanted to be involved. We decided to create a membership community with the resources we wish we had when we first started this journey. Our hope was to create something that changed the standard of care for autism treatment.

Over the course of 4 years of biomedical treatment for my own son, I think about how far he has come, changed, grown and how much happier and healthier he is. I think about where he would be if we didn’t support his body with biomed. He wasn’t getting anything out of speech therapy until we started giving him B12.

Over the course of 4 years of biomedical treatment for my own son, I think about how far he has come, changed, grown and how much happier and healthier he is. I think about where he would be if we didn’t support his body with biomed.

 

Would he still be screaming because he couldn’t communicate?

 

Would he still have sleep issues?

 

Whenever your kid hits a milestone or has developmental gains when you start a new treatment you get so excited. Progress keeps you going.

 

You want to shout it from the rooftops.

 

Things that helped the most along the way were the strength, knowledge, compassion, and intelligence of all of these parents helping each other, sharing experiences and research.  The more brains we can put together, the better the chances of helping our kids, and other people’s kids.

Government spending on research about helping improve the health of children with autism is dismal. We’re the ones in the trenches, and we can’t wait for them to catch up.

 

Creating a Community that Offers Hope for Healing

Our courses share what we’ve learned in an easy-to-understand format that makes learning enjoyable rather than tedious. We have created a roadmap of what has worked for us and the other parents we have coached that you can use as a guide for your own research.  Our goal is to give you the knowledge and tools to approach to the choices you make for your own children with calm and confidence. 

We aren’t giving anyone medical advice, just sharing what we have learned and the data we’ve gathered so you can become the best advocate and help you understand what things might help your child.  Connecting you with a network of doctors who specialize in this autism treatment approach is a top priority too.  We are developing a  joint non-profit that will offer programs to help families afford their services so that your family will have access to professional guidance and care.

It is our hope that empowering, educating, and sharing our experiences with other parents in a safe, supportive community will help them and their children thrive in ways that might have felt impossible in the darkness after diagnosis.

You are welcome to join us on this journey. We have done everything we can to create a community and tons of both free and premium resources that relieve the feelings of overwhelm and help you move forward with hope. To get started, check out our free First Things First Guide and companion 9-Day email series. In this series, we give you some tools you can use right away and you can get to know us better along the way. 

Want to know more? Check out our podcast just for parents like you!

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